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	<title>紅斑性狼瘡照顧 - Ting's Good Life</title>
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		<title>【Lupus】紅斑性狼瘡冷知識-第一集</title>
		<link>https://tingsgoodlife.com/%e7%b4%85%e6%96%91%e6%80%a7%e7%8b%bc%e7%98%a1%e5%86%b7%e7%9f%a5%e8%ad%98-%e7%ac%ac%e4%b8%80%e9%9b%86/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=%25e7%25b4%2585%25e6%2596%2591%25e6%2580%25a7%25e7%258b%25bc%25e7%2598%25a1%25e5%2586%25b7%25e7%259f%25a5%25e8%25ad%2598-%25e7%25ac%25ac%25e4%25b8%2580%25e9%259b%2586</link>
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		<dc:creator><![CDATA[Ting]]></dc:creator>
		<pubDate>Thu, 16 Feb 2023 19:00:00 +0000</pubDate>
				<category><![CDATA[Go with Lupus]]></category>
		<category><![CDATA[紅斑性狼瘡介紹]]></category>
		<category><![CDATA[Lupus]]></category>
		<category><![CDATA[思樂醫]]></category>
		<category><![CDATA[紅斑性狼瘡]]></category>
		<category><![CDATA[紅斑性狼瘡照顧]]></category>
		<category><![CDATA[紅斑性狼瘡病友]]></category>
		<category><![CDATA[自體免疫疾病]]></category>
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					<description><![CDATA[<p>紅斑性狼瘡與我 作為一位「有病的營養師」時常會聽到許多鼓勵，鼓勵我擁有營養的專業，因此知道如何照顧自己。生病是老天爺給我的禮物，但這個病實在太頑皮了，症狀從小時候的血球到近年的腎臟&#8230;</p>
<p>The post <a href="https://tingsgoodlife.com/%e7%b4%85%e6%96%91%e6%80%a7%e7%8b%bc%e7%98%a1%e5%86%b7%e7%9f%a5%e8%ad%98-%e7%ac%ac%e4%b8%80%e9%9b%86/">【Lupus】紅斑性狼瘡冷知識-第一集</a> first appeared on <a href="https://tingsgoodlife.com">Ting's Good Life</a>.</p>]]></description>
										<content:encoded><![CDATA[<p><strong>紅斑性狼瘡與我<img decoding="async" height="16" width="16" src="https://static.xx.fbcdn.net/images/emoji.php/v9/t79/2/16/1f43a.png" alt="&#x1f43a;"><img decoding="async" height="16" width="16" src="https://static.xx.fbcdn.net/images/emoji.php/v9/t5a/2/16/1f98b.png" alt="&#x1f98b;"></strong></p>



<p>作為一位「<strong>有病的營養師</strong>」時常會聽到許多鼓勵，鼓勵我擁有營養的專業，因此知道如何照顧自己。生病是老天爺給我的禮物，但這個病實在太頑皮了，症狀從小時候的血球到近年的腎臟問題，每次回診都讓我再次認識這個疾病，也因為症狀變化多端，醫生和病人總得一起發揮柯南的精神，但說到底，要不要好好吃藥治療，能不能好好吃飯和照顧身體，都是<strong>自己得負責的</strong>！</p>



<p><a></a>我時常收到同為自體免疫疾病所苦的客戶求助，其中很多都是紅斑性狼瘡的病友或家人，常在聊的過程和客戶一起哭（當然多半是一起大笑）真心覺得我們都很勇敢對吧<img decoding="async" height="16" width="16" alt="&#x1f4aa;" src="https://static.xx.fbcdn.net/images/emoji.php/v9/tb/2/16/1f4aa.png"></p>



<p>想好好分享這個疾病以及自身經驗很久了，同時也給再次整理和了解，<a href="https://www.facebook.com/hashtag/%E7%8B%BC%E7%98%A1%E8%A8%98%E4%BA%8B?__eep__=6&amp;__cft__[0]=AZX77Z52P9HIUZTnK8EKjoXNLFW0emVTx_bo1UCvPgo60P76vfXCGlJ86RUW3JwGQn9OM-uvodtt1wntSbWahWYablcLklqOCZkwBqi1MftP5_rr9q-Nh5lzTaCjXW3nowALkvjdVUp58fWEAisG7WDwm9WcqjTEXTX-7TWWyddqp4aRBnJVzgWpU_9g8nCzJnw&amp;__tn__=*NK-R">#狼瘡記事</a> 給所有需要的人，不論是紅斑性狼瘡的病友、病友身邊的親朋好友或任何對此疾病有興趣的人，和我一起來複習吧^^</p>



<div class="wp-block-jetpack-tiled-gallery aligncenter is-style-rectangular"><div class="tiled-gallery__gallery"><div class="tiled-gallery__row"><div class="tiled-gallery__col" style="flex-basis:66.76587%"><figure class="tiled-gallery__item"><img decoding="async" alt="" data-height="1080" data-id="1035" data-link="https://tingsgoodlife.com/?attachment_id=1035" data-url="https://tingsgoodlife.com/wp-content/uploads/2023/03/50.png?w=1024" data-width="1080" src="https://tingsgoodlife.com/wp-content/uploads/2023/03/50.png" /></figure></div><div class="tiled-gallery__col" style="flex-basis:33.23413%"><figure class="tiled-gallery__item"><img decoding="async" alt="" data-height="1080" data-id="1036" data-link="https://tingsgoodlife.com/?attachment_id=1036" data-url="https://tingsgoodlife.com/wp-content/uploads/2023/03/51.png?w=1024" data-width="1080" src="https://tingsgoodlife.com/wp-content/uploads/2023/03/51.png" /></figure><figure class="tiled-gallery__item"><img decoding="async" alt="" data-height="1080" data-id="1037" data-link="https://tingsgoodlife.com/?attachment_id=1037" data-url="https://tingsgoodlife.com/wp-content/uploads/2023/03/52.png?w=1024" data-width="1080" src="https://tingsgoodlife.com/wp-content/uploads/2023/03/52.png" /></figure></div></div><div class="tiled-gallery__row"><div class="tiled-gallery__col" style="flex-basis:33.33333%"><figure class="tiled-gallery__item"><img decoding="async" alt="" data-height="1080" data-id="1038" data-link="https://tingsgoodlife.com/?attachment_id=1038" data-url="https://tingsgoodlife.com/wp-content/uploads/2023/03/53.png?w=1024" data-width="1080" src="https://tingsgoodlife.com/wp-content/uploads/2023/03/53.png" /></figure></div><div class="tiled-gallery__col" style="flex-basis:33.33333%"><figure class="tiled-gallery__item"><img decoding="async" alt="" data-height="1080" data-id="1039" data-link="https://tingsgoodlife.com/?attachment_id=1039" data-url="https://tingsgoodlife.com/wp-content/uploads/2023/03/54.png?w=1024" data-width="1080" src="https://tingsgoodlife.com/wp-content/uploads/2023/03/54.png" /></figure></div><div class="tiled-gallery__col" style="flex-basis:33.33333%"><figure class="tiled-gallery__item"><img decoding="async" alt="" data-height="1080" data-id="1040" data-link="https://tingsgoodlife.com/?attachment_id=1040" data-url="https://tingsgoodlife.com/wp-content/uploads/2023/03/55.png?w=1024" data-width="1080" src="https://tingsgoodlife.com/wp-content/uploads/2023/03/55.png" /></figure></div></div></div></div><p>The post <a href="https://tingsgoodlife.com/%e7%b4%85%e6%96%91%e6%80%a7%e7%8b%bc%e7%98%a1%e5%86%b7%e7%9f%a5%e8%ad%98-%e7%ac%ac%e4%b8%80%e9%9b%86/">【Lupus】紅斑性狼瘡冷知識-第一集</a> first appeared on <a href="https://tingsgoodlife.com">Ting's Good Life</a>.</p>]]></content:encoded>
					
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